What to Avoid In Cosmetics if You Have Celiac Disease

 Those of us with Celiac Disease are required to follow a strictly gluten-free diet. Okay. But what about the gluten that could be lurking in products we use daily? What about our cosmetics? This is a question that seems to never have an answer that’s set in stone. However, many Celiacs have reported experiencing a range of symptoms, such as rashes, hives, burning, itching, and even swelling–all caused by their cosmetics.

These reactions seem to be typical among many Celiacs, which begs this question:
Do Celiacs need to follow a gluten-free skincare regimen?
That choice is yours to make. If you’ve been using department store cosmetics and feel “glutened” afterward, or have experienced rashes, redness, burning, or swelling, perhaps it’s time to give gluten-free cosmetics a try.
Why Do Gluten-Free Cosmetics Matter?
Because the FDA rules that govern makeup are different than they are from food, it can be pretty difficult to understand if there’s gluten present in your cosmetics or not. The general answer for most of the well-known cosmetics manufacturers is yes.
What’s alarming about that is the fact that many makeup manufacturers can’t tell you where their ingredients come from because they don’t know. As a result, those of us with Celiac Disease are left to fend for ourselves.
Some of the most common cosmetic ingredients are wheat and oat derivatives. It’s no secret that their use is widespread in the cosmetics world. What’s really important to remember is that even if a grain isn’t mentioned in the ingredient name, that doesn’t mean it doesn’t contain gluten.
In fact, the word “gluten” is highly unlikely to appear on the ingredient labels of cosmetics at all! As a result, you need to be diligent about reading those ingredient labels, and if you’re unsure of what to look for, we’re here to help!

The list above is pretty exhaustive, but there may be other ingredients out there, too. If you’re not sure about an ingredient (and it’s not on this list), do some research first. There’s always the option to just say no, and opt for cosmetics that you’ll know are good for you.
Two skincare companies that offer great lines of gluten-free cosmetics are 100% Pure and Acure Organics.
Via:blog.naturalhealthyconcepts.com

A letter to a waitress who mocked my disease

Dude note: Sometimes emails sent to me need no introduction. Just read, absorb and share. Thank you.

————————
To the waitress(es) who mocked me for ordering gluten free:
This is not a thank you letter.
You know the kind. The social media posts that call out a social injustice, but in turn end up “thanking” the culprit for some sort of inspirational reason. Honestly, I thought about wording this in that way. Then I thought about the way it felt when you openly mocked my disease.
The same way it feels when I see people do it in the media. The same way it feels when I read about children getting bullied at school for the same reason.
I will not say thank you.
“What you don’t know is that what one of you labeled as “attention-seeking behavior,” is actually considered “unwanted visibility” in the Celiac community.”
We only met once, as your shift was over shortly after you took our order. You don’t know much about me, or I about you.
What you don’t know is that I could hear you. You were right behind me — or was that the point?
What you don’t know is that the words you and the other(s) were saying are the exact words I fear the staff is thinking every time I go out. Are they taking me seriously? Will the food be safe? Will I spend the next 12-24 hours violently ill and have my intestines damaged because I took this risk of going out?
What you don’t know is that I didn’t want to ask you all those questions. I long for the days I could look at a menu and order simply and without fear.
What you don’t know is that what one of you labeled as “attention-seeking behavior,” is actually considered “unwanted visibility” in the Celiac community. Having to explain my disease can be and is emotionally exhaustive.
I will not say thank you.
What you don’t know is that there are millions of people with Celiac Disease. MILLIONS.
What you don’t know is what it’s like to feel like a burden to your friends and family because of something you can’t control.
What you don’t know is what it’s like to be afraid of food.
What you don’t know is what it’s like to constantly wash your hands every day, praying you don’t get sick when you touch your food.
What you don’t know is what it’s like to never relax.
“What you don’t know is the feeling of those jokes going straight to my (albeit sensitive) heart, knowing that the most serious, dangerous part of my life, the thing that I cannot afford to stop thinking about, is a punchline.”
What you don’t know is that my mind can never shut down from thinking about gluten free. You see, my life literally depends on it.
What you don’t know is that I will never again in my entire life be able to eat something without doing FBI-like research on it to know if it’s safe.
I will not say thank you.
What you don’t know is what it’s like to go to any social event and know that you can’t eat a single thing there.
What you don’t know is the overwhelming feelings of both gratitude and isolation when a friend or family member goes out of their way to bring food to that social event that is safe for you to eat.
What you don’t know is that my husband had to very thoroughly brush his teeth after our meal before he could kiss me again, because a simple kiss on lips that have touched gluten is dangerous for my body.
I will not say thank you.
What you don’t know is that I have to endure jokes about gluten free every single day.
What you don’t know is the feeling of those jokes going straight to my (albeit sensitive) heart, knowing that the most serious, dangerous part of my life, the thing that I cannot afford to stop thinking about, is a punchline.
“What you don’t know is that I’m not angry with you; you simply just don’t understand.”
What you don’t know is that I wish I could have said these things to your face. Not to be aggressive or mean, but to simply get the words out. Simply to let one more person know that Celiac Disease is real and it’s not easy.
What you don’t know is that I’m not angry with you; you simply just don’t understand.
You may have actually known some of these things. I wouldn’t know that, though, because we only met briefly.
I don’t know anything about your life. I’m sure you have struggles; everyone does. This is mine.
So no, I will not say thank you. There is not some grand inspirational lesson learned in this. This is my every day life, and it will only get worse unless people tell the world what it’s like to live with Celiac.
And that’s what I plan to do.

Via : glutendude.com

Celiac Disease Can Lead to Increased Risk of Bone Fractures and Osteoporosis

When you have celiac disease you’re well-acquainted with the digestive symptoms of the condition. But other than the gut and small intestine, celiac disease also affects other important body systems—including the bones and skeleton. Osteoporosis, a disease in which bones become weakened, thin and brittle, can result from celiac disease.
In fact, those who have celiac disease have a 3.5 percent chance of being diagnosed with osteoporosis compared to only .05 percent in the general population. They also have double the risk of bone fractures.

Osteoporosis

Those who have celiac disease are also more at risk for the main complication of osteoporosis—fractures, according to Seymour Katz, MD, clinical professor of medicine at the New York University School of Medicine. Katz is also an attending gastroenterologist at North Shore-Long Island Jewish Health System and St. Francis Hospital.
He notes that the incidence of fractures among those with celiac disease up to age 70 is about 40 percent, about twice that of the general population, according to some studies. Katz authored a review study on gastrointestinal diseases and their link to osteoporosis, published in the journal Gastroenterology & Hepatology in 2010.
“In the general population, osteoporosis strikes patients most often when they’re in their 50s and 60s. But in patients with celiac disease, you can see osteoporosis 15 years earlier,” says Donald Kirby, MD, director for the Center for Human Nutrition at the Cleveland Clinic in Cleveland. Osteoporosis can often set in over the age of 65, but for untreated celiac disease patients the bone disease can even occur in childhood
The presence of osteoporosis in a younger adult or child should alert doctors to possible undiagnosed, underlying celiac disease, Kirby says. Because celiac disease is often silent and can lay dormant for many years, osteoporosis can be the first tip off that a patient has the condition, according to Kirby.
As we age our bones tend to lose calcium, and as a result, bones can become less dense and more brittle.
Those who have undiagnosed celiac disease are at increased risk for osteoporosis because when they eat gluten, their immune systems go into overdrive and destroy the lining of the small intestine that usually absorbs nutrients from food. Thus, as well as being prone to malnutrition, celiac disease patients do not absorb enough calcium and vitamin D to build strong bones and prevent them from weakening. Because celiac disease patients  don’t absorb the nutrients from food, they can also be underweight, another risk factor for osteoporosis.
The major complication of osteoporosis is an increased risk for fractures in the spine, hip, shoulder and other bones. These fractures can sometimes lead to significant periods of illness and, in the elderly, disability or even death when long periods of immobility after a fracture lead to fatal pneumonia.

Bone mineral density

The link between celiac disease and low bone mass—or bone mineral density—as well as osteoporosis and increased fracture risk has been documented in several large international studies.
In a Swedish study published in the Scandinavian Journal of Gastroenterology in 2009, researchers tested 6,480 women between the ages of 50 to 64 for the presence of an antibody or protein known as tissue transglutaminase autoantibody, considered a marker for celiac disease. The same women also answered questionnaires regarding their health and history of fractures, and underwent bone imaging scans of the wrist.
Results indicated that women with high levels of the autoantibody for celiac disease also had sustained a greater number of fractures and had lower bone mineral density at the wrist than women with lower levels. Women with higher levels of the autoantibody for celiac disease were also more likely to have osteoporosis.
In a Canadian study published in the Canadian Journal of Gastroenterology, 376 women from Manitoba, Canada, were tested for celiac disease autoantibodies and also underwent bone mineral density imaging scans called dual-energy X-ray absorptiometry (DEXA) scans. A DEXA imaging scan is most accurate way to diagnose osteoporosis.
The women in the study positive for the celiac disease autoantibodies were also more likely to have osteoporosis. More than 67 percent who tested positive were also diagnosed with osteoporosis through the DEXA bone scans.  In contrast, only 44.8 percent of women who tested negative for celiac disease autoantibodies had osteoporosis.

Improvement on gluten-free diet

The good news about osteoporosis in celiac disease patients is that it can often be prevented or improved with a gluten-free diet, particularly in children. “It’s a whole lot easier to prevent osteoporosis than to treat it,” Kirby says. In those who have lowered bone density that has not become serious enough to be classified as osteoporosis, a gluten-free diet and calcium with vitamin D supplementation may be sufficient to strengthen the patients’ bones.
Often the successful treatment of celiac disease will enable patients to absorb the nutrients they need to prevent osteoporosis. Other than vitamin D and calcium, weight-bearing exercise is also beneficial for prevention. “Patients with celiac disease can have a low bone mass, and after treatment with a gluten-free diet, they will increase their bone density,” says Meryl S. LeBoff, MD, director of the skeletal health and osteoporosis center at Brigham and Women’s Hospital in Boston and professor of medicine at Harvard Medical School.
The greatest increases in bone density occur in the first year of treatment with a gluten-free diet, according to LeBoff. “It is so important to diagnose patients with celiac disease because not only can treatment result in alleviating symptoms of the disease but it can also improve bone mineral density,” LeBoff says.
Children with celiac disease who are treated with a gluten-free diet are much more likely to reach a normal bone mass than adults. Even after successful treatment for celiac disease, adults may have osteoporosis or bones that have lower bone mass than normal for their age group.
Experts say that adult celiac disease patients should consider being tested for osteoporosis because there’s such a strong link between the two diseases and because adults are less likely to improve their bone density with a gluten-free diet alone and may need supplements and medication.
In adults, bone mineral density after treatment with a gluten-free diet only increases about 5 percent a year, according to Katz.

Treatment

Still, osteoporosis can be successfully treated, and the treatments can help slow down the bone loss that is the hallmark of the disease as well as prevent fractures. Treatment most often consists of medications known as bisphosphonates, such as alendronate (Fosamax), which act against cells called osteoclasts involved in the loss of bone mass in osteoporosis.
Other treatments include calcitonin, teriparatide (Forteo, given by injection) and hormone replacement therapy. All these medicines act against osteoclasts and can reduce the risk of fracture in patients with osteoporosis.
Are any of these medications superior for patients with celiac disease? That question hasn’t really been studied but, Kirby notes that celiac disease patients, particularly those who still have some symptoms of malabsorption, will recover bone mass more successfully with medications given by injection or infusion, rather than oral pills.
The decision of whether or not to start a patient on osteoporosis medications rather than just calcium and vitamin D supplements is made after a physician assesses the severity of the patient’s low bone mass and/or osteoporosis and their fracture risk, according to Katz.
People with gluten intolerance do not have the same increased risk for osteoporosis as those who have celiac disease because they don’t have problems absorbing nutrients, according to Kirby. As a result they don’t have the same vitamin D and calcium deficiencies as celiac disease patients.
A gluten-free diet can lead to both a better quality of life and improved gastrointestinal symptoms and bone mass for those with celiac disease and osteoporosis. But keeping both diseases at bay is not always an easy task.
“Many patients feel better when they go on a gluten-free diet. But after a while they start to eat gluten—to have a pizza, a beer and other foods with gluten. It’s not an easy diet to stick with,” Katz notes.
When low bone mass or osteoporosis is a complication of celiac disease, patients also have to consistently take calcium and vitamin D and any prescribed medications.  They also have to regularly do weight bearing exercise such as walking or running.
“It’s so important for celiac disease patients to understand the importance of a gluten-free diet in treating their underlying disease as well as preventive strategies for osteoporosis,” LeBoff says.

Barbara Boughton is an award-winning health and medical writer. Her articles have appeared in publications such as The Lancet Oncology, Journal of the National Cancer Institute, Alternative Medicine Magazine, and Consumer Reports. She is the co-author of  Reduce Your Cancer Risk: Twelve Steps to a Healthier Life.
Via:glutenfreeliving.com

Top London restaurant goes gluten and dairy free… and no one notices

Top London restaurant goes gluten and dairy free… and no one notices

The executive chef at one of London’s top restaurants has revealed how he made his à la carte lunch and dinner menus gluten and dairy free months ago — and nobody has noticed.
Dominic Teague, from Indigo restaurant in Covent Garden’s One Aldwych hotel, told the Standard that he worked on his new menu over several months after noticing a “massive uptake in guests who wanted gluten and dairy free dishes”.
Mr Teague, formerly of the Lanesborough Hotel and Marco Pierre White’s L’Escargot, added that he had “experienced first hand” how difficult eating out could be for those with dietary requirements as his wife is intolerant to gluten and his mother to dairy.
The chef launched the menu three months ago, becoming one of the first in the city to have their entire lunch and dinner offerings free from gluten and dairy.
So far, he said, nobody has been able to tell the difference. “No one has said anything. We have regulars who have all given great comments about the new menu but not about it being gluten or dairy free,” he added.

“A few people have been told after, or when they ask for gluten-free food. Most can’t believe it. We have had loads of people coming back.”

Challenge was bread …

Mr Teague, 43, who lives with his family in Blackheath, said a particular challenge on the menu was bread, which is made in-house. Over several weeks he developed a samphire and onion bread made from buckwheat flour — one of his proudest creations.
He said: “The most challenging items were the bread, the fish and chips and the chocolate mousse. But they get the best comments — especially making a chocolate mousse dairy-free. It is made with coconut oil instead.”
His team didn’t announce the menu to avoid alienating those without dietary requirements.
He added: “One of my priorities was not to make it out as a fad. We didn’t want people to think I was doing this just to be different. I did this for real reasons and it fits into the hotel’s philo-sophy of health and wellbeing.
“We were subtle about it. But we are still a luxury hotel. If someone wants a béarnaise with their steak, we’ll do it for them.”

Via:healthynations.info

10 Warning Signs Of Celiac Disease Everyone Ignores!


About 1 in 133 Americans has some form of gluten intolerance. While it’s an easily fixable condition, many people wait for 6 to 10 years to be diagnosed. The vast majority of people with the condition will never be diagnosed.
And that’s a shame when you consider how far-reaching the symptoms are. Some people go to all sorts of lengths to treat the mental and physical symptoms of gluten intolerance without ever really figuring out gluten is at the root of their problems.
Are you one of them?

Let’s take a look at 10 commonly-ignored signs and symptoms of gluten intolerance.

1. Digestive Issues


There are many digestive issues associated with gluten intolerance. These include gas, abdominal pain or cramping, bloating, diarrhea, or constipation in children. (Medicine Net)
Also pay attention for foul-smelling stool and nausea after eating foods with gluten as that’s likely to be your body trying to tell you something.

2. Keratosis Pilaris


Keratosis pilaris, otherwise known as chicken skin, is a skin condition that appears as raised, hard bumps on the skin.
They look like goosebumps, but they don’t go away like goosebumps would. This skin condition along with dermatitis herpetiformis, a similar skin condition, has been linked to gluten intolerance. (USNews)
It can be easy to shrug keratosis pilaris off as it’s technically harmless, which is why it often gets missed as a symptom of gluten intolerance.

3. Loss of Energy or Attention


If you feel like your brain is foggy or fatigued after eating a meal with gluten, this may be a sign of gluten intolerance.
It happens because your body is working hard to remove a harmful substance and it takes away from your normal energy. (Allergic Living)

4. Diagnosis of an Autoimmune Disease

Image Credit: Yale News
If you have been diagnosed with an autoimmune disease and are experiencing some of the other symptoms we’ve mentioned, the culprit for all could be a gluten intolerance.
Many people with gluten intolerance will develop the symptoms of an autoimmune disease, especially if they also have celiac disease. (Celiac Central)

5. Mental Illness


Neurological issues like peripheral neuropathy (tingling in the extremities), epilepsy, depression, anxiety, and ADHD are all associated with gluten intolerance. (About Health)
Interestingly enough, although gluten-intolerant individuals bear the brunt of its depression-causing properties,even those without gluten intolerance have been found to experience depression when eating it consistently.

6. Infertility


When a person who is gluten intolerant eats gluten, they put their body in an inflamed state, which can make it more difficult for them to contribute to reproduction – whether male or female. (Hillcrest Hospital South)
Once gluten-intolerant patients adopt a gluten-free diet, their reproductive system goes back to normal.

7. Migraines


Migraines are commonly caused by food intolerances like chocolate or gluten. If you get chronic migraine headaches, it may be a gluten intolerance. (Gluten Free Society)

8. Chronic Fatigue or Fibromyalgia


According to one study, a gluten intolerance may be the source of chronic fatigue or fibromyalgia. (NCBI) Many people who are diagnosed with these conditions never understand why they have them when really it’s as simple as what they’re putting in their stomachs.

9. Joint Pain


Joint pain, inflammation and swelling are common signs of gluten intolerance. (Celiac Central)
Many people with arthritis who don’t realize they also have a gluten intolerance face harsher arthritis symptoms as a result of continuing on a gluten-laden diet.

10. Mood Swings


Eating gluten when you’ve got an intolerance to it can lead to mood swings. (SFGate) It can also lead to anger management issues.
VIa: davidwolfe.com

3 Steps to Recover After Getting Glutened

glutened
If you are gluten sensitive or have celiac disease you know all too well about accidentally ingesting gluten — otherwise known as getting “glutened.”
The outward manifestation of getting glutened may be different for everyone, and can cause a variety of symptoms such as brain fog, diarrhea, constipation, headache, rash, weakness, joint pain, swelling, vomiting, and fatigue. However, inside your gut the effects are essentially the same; gluten is wreaking havoc. Gluten causes inflammation and damage to the intestines. Ridding yourself of this inflammatory protein, reducing inflammation and healing your gutfrom the damage are essential to recovering as quickly as possible.

3 Steps To Recover After Getting Glutened

1. The more quickly you can get the gluten out of your system, the better you’ll feel. 
These three things will help you do that promptly and effectively:
Digestive Enzymes. Digestive enzymes help speed up the breakdown and absorption of macronutrients. Be sure to take an enzyme that includes dipeptidyl peptidase (DPP-IV), which helps break down gluten specifically. In fact, I recommend that those with celiac and gluten intolerance take enzymes with DPP-IV when dining out.
Binding agents. Activated charcoal and bentonite clay bind toxins and help reduce gas and bloating. It’s best to increase water intake when taking either of these to avoid constipation, which will only delay healing.
Hydration. Fluids will help flush your system and keep you hydrated if you’re vomiting or have diarrhea. In addition to regular water, you can try coconut water, which contains electrolytes that may have been lost through vomiting or diarrhea.

2. Decrease inflammation.

Inflammation occurs naturally in our body when there has been an insult or injury to it. Decreasing this inflammation is essential to healing your gut. These three things will help you reduce inflammation quickly:
Omega-3 fatty acids. Fish oils, flax and chia seeds are full of anti-inflammatory omega-3 fatty acids. I recommend 1-2 grams of omega-3 oils daily. You can go up to 4 grams a day for a week after accidental gluten ingestion.
Ginger has high levels of gingerol, which gives it a natural spicy flavor and acts as an anti-inflammatory in the body. It also has potent anti-nausea properties and can ease stomach cramping. I like to drink warm ginger tea as a comforting, anti-inflammatory beverage.
Turmeric is a member of the ginger family that contains the active ingredient curcumin, which is known for its antioxidant and anti-inflammatory properties. My anti-inflammatory smoothie with turmeric is a great drink to help you quickly recover from getting glutened.

3. Heal your gut.

Nearly 70% of our immune system is in our gut. Having a healthy gut is crucial for optimal health. The six things below will help you heal your gut.
Probiotics. Routinely, I recommend taking a highly concentrated probiotic (25-100 billion units) a day. I advise my patients to “double-up” on their probiotic dose for a week after a gluten exposure.
L-Glutamine. Glutamine is an amino acid that is great for repairing damage to the gut, helping the gut lining to regrow and repair, undoing the damage caused by gluten. I recommend 3-5 grams a day for a week after exposure.
Slippery elm. Slippery elm contains mucilage, which stimulates nerve endings in the gastrointestinal (GI) tract to increase its secretion of mucus. Mucus forms a barrier in the gut to protect it and promote healing.
Deglycyrrhizinated licorice (DGL). DGL is an herb that’s been used for more than 3,000 years in the treatment of digestive issues, including ulcers and indigestion. DGL also supports the body’s natural processes for maintaining the mucosal lining of the GI tract.
Marshmallow root is a multipurpose supplement that can be used for respiratory or digestive relief. Like slippery elm, it contains mucilage, which eases the inflammation in the stomach lining, heals ulcers, and treats both diarrhea and constipation by creating a protective lining on the digestive tract.
Bone broth is very high in the anti-inflammatory amino acids glycine and proline. The gelatin in bone broth protects and heals the mucosal lining of the digestive tract that may get disrupted by being glutened.
Once you realize that you have been glutened, implement this three-step approach as soon as possible. If you are not seeing any improvement in your symptoms after three days or you’re getting worse. I would advise you to follow up with your physician.

Via : amymyersmd.com

What I want you to know about Celiac Disease

This is a very raw post about life with celiac disease that I wrote a couple months ago after being “glutened”.  I was frustrated and sad, and this is what poured out.  I haven’t posted it publicly before, but feel like today is a perfect day to do it because of the Disney and Chelsea Handler craziness of this week.
What I want you to know about celiac disease - inspiredrd.com
And really, it all comes down to this:
Choosing to eat gluten-free because it makes you feel better and having to eat gluten-free to save your life are two very different things.  <———ATTENTION MEDIA
(Edit: I wasn’t referring to gluten intolerance in the statement above.  I meant those who “try to eat gluten-free because it makes me feel better but then I cheat whenever I feel like it and I’m really doing it because it’s the fad of the moment”.  I hope that clears it up.)
So here they are, my raw feelings on
what I want you to know about celiac disease:
I want you to know that I’m not a picky eater, I’m not on a fad diet, I’m not a health freak.
I want you to know that I feel like the biggest pain in the butt when I sit down at your table and have to go through my spiel.  I want you to know that I see your eyes roll when I use the term gluten-free, and it makes me nervous for my health.
I want you to know that gluten exposure turns me into a different person.  Like a Dr. Jekyll and Mr. Hyde kind of a change.  I go from feeling like a normal happy human to, in an instant, feeling like I want to punch the world in the face.  I want you to know that I get anxious, depressed, frustrated, and short-tempered when gluten enters my body.  I try to stay away from my family as much as possible so I don’t say anything I will later regret, although it inevitably happens.
I want you to know that this isn’t an “upset tummy” disease.  All celiacs are different, and my symptoms affect my entire body.  First it feels like icy fingers are fiddling with my brain.  Then my stomach is a mess and fatigue hits me like a truck.  I get hot flashes, mood swings, bladder pain, aching joints, and headaches.  The worst part lasts 1-2 weeks, and I don’t feel like myself again for at least a month.  Sometimes I think I’m better then BAM, I’m driving with my kids in the car and I can’t focus my eyes or remember where I’m going.  I want you to know it’s scary.
I want you to know that I’m sick of talking about celiac disease.  But if we’re going to hang out, it’s going to come up.  Social interactions always seem to involve food, don’t they?
I want you to know that nothing about this is easy.  I thought being a dietitian would make the transition smoother.  It hasn’t.  I want all health care providers to hear this: Stop telling your newly diagnosed celiac patients that treating the disease is easy.  IT’S NOT.  And stop calling celiac disease “trendy”.  It’s like a slap in the face.
I want you to know that as much as it helps to have awareness and thousands of gluten-free options these days, those things hurt us too.  Food companies and restaurants are cranking out “gluten-free” items as fast as they can to cash in on the fad, and most of them aren’t doing it responsibly.  Then we get sick.
I want you to know that I have to think about celiac disease all the freaking time.  Every time I put food or drink in my mouth, lotion on my skin, gloss on my lips.  Every time I serve my kids pizza at a party and have to scrub my hands.  Every time someone asks if I want to meet for lunch.
I want you to know that as much as I hate this disease, I’m thankful to know the cause of my health problems.  I’m thankful to have a name for it.  I want you to know that there is an incredible celiac community out there full of beautiful humans who love and support each other.  I don’t know where I would be without them.
I want you to know that if you suspect you might have celiac disease, you need to get tested before going gluten-free.  Don’t let anyone tell you otherwise.
I want you to know that you know someone with celiac disease, and they need your love and understanding. This is harder than it looks.
Source :http://inspiredrd.com/2013/05/what-i-want-you-to-know-celiac-disease/